HHSC Highlights Resources During Down Syndrome Awareness Month

Down Syndrome Awareness Month in October is the perfect time to learn more about the most common chromosomal condition worldwide.

About 5,800 babies are born and diagnosed with Down syndrome in the U.S. each year, according to the Centers for Disease Control and Prevention.

HHSC Early Childhood Intervention (ECI) and DSHS Healthy Mothers and Babies programs offer support for families with children diagnosed with Down syndrome.

Debbie Cohen's son, Leighton, was diagnosed with Down syndrome at birth. After 29 days in the neonatal intensive care unit, the Cohens connected with their local ECI program through a parent advocate.

"The ECI team helped me navigate case management and became a resource where I could ask any question and feel like I was understood," said Debbie Cohen.

After Leighton transitioned out of ECI at age 3, Cohen joined the ECI Advisory Committee, which advises the program office on the statewide ECI system. She also serves as a parent advocate to help share information with families and help them connect with ECI.

"I'm a big advocate for ensuring that all children are getting access to the most appropriate care in their community," said Cohen. "ECI is especially important for children who are born with disabilities or developmental delays, supporting their launch into school success."

People with Down syndrome have a higher risk for respiratory, hearing and eye-related issues, congenital heart defects, thyroid disorders, and other medical conditions. Babies diagnosed with Down syndrome will likely experience developmental delays in motor, language and self-help skills as well as social development.

Early intervention professionals can help parents and guardians develop strategies to best support their child's developmental needs. They can also provide services such as speech, occupational or physical therapy.

To learn more, visit the DSHS Down Syndrome webpage.