Your Voice Was Heard: $25 Million for NF Research Proposed in Fiscal Year 2026 Defense Conference Agreement

January 20, 2026 -The Senate and House of Representatives Committee on Appropriations has released the final negotiated agreement for the Fiscal Year 2026 Defense spending bill - and we are pleased to report that it includes $25 million in funding for the Neurofibromatosis Research Program (NFRP) through the Congressionally Directed Medical Research Program (CDMRP). This bicameral, bipartisan agreement represents a major victory for the NF community.

We're not across the finish line yet. The package containing the Defense bill still must pass the full House and Senate and be signed by the President before becoming law. But today, we're grateful for this momentum and for every advocate who helped make it possible.

After NF research funding was unexpectedly cut in Fiscal Year 2025, this is a hard-earned step forward. The agreement announced today is a direct result of this community's efforts.

We'll keep you updated as the process continues. Thank you for your continuing efforts and for standing with us every step of the way.

This momentum is powered by advocates like you. Follow the latest updates at ctf.org/advocacy .

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