The Children's Tumor Foundation
02/03/2026 | Press release | Distributed by Public on 02/04/2026 10:33
$25 Million for NF Research SECURED in FY 2026 Defense Bill — Because of YouEmpty heading
February 3, 2026 - Thanks to your advocacy, we are thrilled to share that $25 million in federal funding has been secured for the Neurofibromatosis Research Program (NFRP) through the Congressionally Directed Medical Research Programs (CDMRP) for Fiscal Year (FY) 2026.
Both the House and Senate have passed the legislation that includes the Defense spending bill, and the President is expected to sign it into law soon (today).
This is a major victory for the NF community - and it happened because advocates like you spoke up.
Dedicated NF research funding was unexpectedly eliminated during the FY 2025 appropriations process, putting critical research at risk. Through sustained outreach, strong engagement with lawmakers, and unified community action, NF funding has now been fully restored in FY 2026.
The CDMRP is a vital engine for NF research, including support for the NF Clinical Trials Consortium and other efforts accelerating the development of new treatments and therapies. This renewed investment helps ensure continued progress toward effective treatments and better care for people living with NF.
You made this win possible.
While this is an important milestone, the work continues. We are already preparing for the FY 2027 appropriations cycle and will keep pushing forward - until we End NF.
Thank you for standing up, speaking out, and making your voices heard!
Follow the latest updates at ctf.org/advocacy.
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Previous Update:
January 20, 2026 - The Senate and House of Representatives Committee on Appropriations has released the final negotiated agreement for the Fiscal Year 2026 Defense spending bill - and we are pleased to report that it includes $25 million in funding for the Neurofibromatosis Research Program (NFRP) through the Congressionally Directed Medical Research Program (CDMRP). This bicameral, bipartisan agreement represents a major victory for the NF community.
We're not across the finish line yet. The package containing the Defense bill still must pass the full House and Senate and be signed by the President before becoming law. But today, we're grateful for this momentum and for every advocate who helped make it possible.
After NF research funding was unexpectedly cut in Fiscal Year 2025, this is a hard-earned step forward. The agreement announced today is a direct result of this community's efforts.
We'll keep you updated as the process continues. Thank you for your continuing efforts and for standing with us every step of the way.
This momentum is powered by advocates like you. Follow the latest updates at ctf.org/advocacy.
The Children's Tumor Foundation published this content on February 03, 2026, and is solely responsible for the information contained herein. Distributed via Public Technologies (PUBT), unedited and unaltered, on February 04, 2026 at 16:33 UTC. If you believe the information included in the content is inaccurate or outdated and requires editing or removal, please contact us at [email protected]