The Office of the Governor of the State of Virginia

05/05/2026 | Press release | Archived content

International GM1 Gangliosidosis Awareness Day

By virtue of the authority vested by the Constitution of Virginia in the Governor of the Commonwealth of Virginia, there is hereby officially recognized:

International GM1 Gangliosidosis Awareness Day

WHEREAS, GM1 Gangliosidosis is a rare, inherited disease that results in neurodegeneration and a progressive loss of abilities until death; leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis affects 1 in every 100,000 - 200,000 live births; and

WHEREAS, lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and barriers to accessing specialized services and proper rehabilitation and support; and

WHEREAS, early diagnosis of GM1 Gangliosidosis is essential to the timely management of clinical complications, genetic counseling, and access to treatment and therapeutic remedies; and

WHEREAS, the goal is to raise awareness and promote the accurate and timely diagnosis of this rare inherited lysosomal disorder, known as GM1 Gangliosidosis;

NOW, THEREFORE, I, Abigail D. Spanberger, do hereby recognize May 23, 2026, as INTERNATIONAL GM1 GANGLIOSIDOSIS AWARENESS DAY in the COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.

The Office of the Governor of the State of Virginia published this content on May 05, 2026, and is solely responsible for the information contained herein. Distributed via Public Technologies (PUBT), unedited and unaltered, on May 19, 2026 at 21:24 UTC. If you believe the information included in the content is inaccurate or outdated and requires editing or removal, please contact us at [email protected]