Expanding Access to Specialized NF Care in Western New York

Adults living with neurofibromatosis and schwannomatosis (NF) in Western New York now have expanded access to coordinated, specialized care close to home. Roswell Park Comprehensive Cancer Center in Buffalo has joined the Children's Tumor Foundation's NF Clinic Network (NFCN), bringing its Adult Multidisciplinary Neurofibromatosis Clinic into the first nationwide network dedicated to improving clinical care and establishing best practices for people living with NF.

As part of the NFCN, Roswell Park has earned NF1 and schwannomatosis specialty designations, reflecting its adherence to rigorous standards in evidence-based NF management and its capacity to address the unique needs of individuals living with these conditions, ensuring patients and families receive timely information, guidance, and resources throughout lifelong care. The clinic provides experienced radiology, cancer screening and surveillance, supportive services, and access to the latest treatments through clinical trials - critical components of coordinated, lifelong care for adults facing the complex risks associated with NF.

With Roswell Park's addition, the NF Clinic Network now includes over 80 recognized clinicsacross the United States and Canada, strengthening local access to multidisciplinary expertise while accelerating national progress in research and care.

Click here to read Roswell Park Comprehensive Cancer Center's full announcement.

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