Children’s National recertified as PPMD Certified Duchenne Care Center - Children's National

Children's National Hospital has been recertified as a Parent Project Muscular Dystrophy (PPMD) Certified Duchenne Care Center and has received PPMD's new Clinical Research Designation, recognizing both sustained excellence in multidisciplinary Duchenne care and a demonstrated commitment to clinical research.

The Neuromuscular Medicine Program at Children's National offers care through a robust, multidisciplinary clinic that brings together specialists in neurology, cardiology, pulmonology, endocrinology and bone health, physical and occupational therapy, nutrition and other key disciplines. This integrated model ensures that patients and families receive coordinated care that addresses the complex and evolving needs associated with Duchenne.

PPMD requires centers to reapply for certification every five years to ensure ongoing adherence to strict criteria, including specialist expertise, coordinated care models and comprehensive services. Recertification provides assurance of consistent, evidence-based care for individuals with Duchenne muscular dystrophy.

Introduced in 2025, the Clinical Research Designation distinguishes Certified Duchenne Care Centers that actively conduct Duchenne clinical trials and research. This designation highlights programs that contribute to reducing variability in care, strengthening clinical trial outcome measures and accelerating the development of emerging therapies.

"Recertification as a Certified Duchenne Care Center affirms Children's National's commitment to coordinated, evidence-based Duchenne care," said Sarah Wright, DO, program director of the Neuromuscular Medicine Program. "The Clinical Research Designation builds on that foundation, reflecting our focus on advancing research, expanding access to clinical trials, and improving outcomes for patients and families."

Through recertification and this new research designation, Children's National continues to serve as a clinical and research resource within the national Duchenne care network while also improving the care of all patients with neuromuscular diagnoses.